Eric had his blood drawn and tested today, and then a short visit with the doctor. He needs a platelet transfusion, so that is scheduled for tomorrow. On Thursday he has another visit with the doctor and starts his seven day series of low dose chemotherapy.
We have settled into a routine that is ruled by Eric's medications, pain, fatigue and sleep deprivation. Saturday morning was our last walk as Eric has become progressively weaker and unsteady. I am doing better at forcing food on Eric every couple of hours. I hadn't realized that was part of my caretaker job until he lost 10 pounds in one week. At today's appointment his weight hadn't dropped, which made me feel better. Hopefully he won't fire me if I keep him at a steady weight.
Last week we found out that 5 of Eric's 6 siblings eligible to donate bone marrow were not compatible with Eric. I always knew he was unique, but am a little discouraged by this news. His last eligible sibling's results will be a little slow coming in because she lives out of state and wasn't able to be tested at LDS hospital by the bone marrow transplant team we are seeing. The others were all tested at LDS because they were in state for a family reunion.
I talked to the bone marrow transplant team coordinator today. She has started making requests for matches from the national bone marrow registry, but it is a slow process when you have to use them. She cautioned me that it could easily take 6 to 8 weeks to find a match that will become the donor. I am a bit discouraged by this news because it is so hard to see Eric become weaker and more disoriented by the above mentioned medications, pain, fatigue and sleep deprivation.
Our goal is to just take each day at a time and not worry about things that are out of our control. We appreciate your faith and prayers on our behalf. It helps us keep going.
That's discouraging that you don't have a match yet. You are certainly correct about Eric's uniqueness. I hope your week goes well with the chemo. Please let me know if I can bring any of the food you need to force on Eric. It seems like I spend my summer making daily grocery store runs anyway.
ReplyDeleteYou guys are in my prayers. Hugs for you and Eric.
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